First night in the NICU. Had a good start to the evening. Belly looked good starting off and his was breathing ok. Put Jonah on the ventilator. Kept good breaths on that machine. Got settled into his new room for the next 2-3 months.
Saturday, June 28th
Desiree woke me up with a phone call saying I needed to get to his room because they had called her saying his heart rate was low and that they needed to pull more fluid from his body. I rush to the front desk but they tell me to wait in the waiting room and the doctor will come speak with me. Once he comes out he explains that they had to put him back on the oscillator and his oxygen and heart rate got low. They pulled another 150-160 mL out to help with any breathing issues he may have had.
Rest of the day was good.
Sunday, June 29th
Day went good. They started him on the black light for jaundice. When they switched out the IV poles, they decided to remove one of the blood pressure medicines as he was doing good. That evening, however, around 7:30pm, Jonah's blood pressure went down. The normal is around 30-35 and Jonah's dropped to 18 at one point. Thank god for Amy (our nurse) as she stayed on top of the doctor's to get his pressure back up. They upped his medicine a couple times and was finally able to stabilize that during the night.
Monday, June 30th
Doctor's did their rounds and said he has improved more than they expected.They are trying to find a good balance between fluid and meds to keep his numbers at a good rate while also weening him off some medicine.
The evening they decided to drain some more fluid since his belly became bigger. They did the x-ray and it showed that his belly was big and full and that his lungs were not producing the good amount of CO2. His intake of O2 was still good but he wasn't getting rid of the "trash" (CO2) like they would have liked. Once they did this, his gas levels later this evening, looked better.
Tuesday, July 1st
Jonah's looking good. They decided to take him off of the oscillator and put him back on the ventilator. This causes him to work harder for breaths but this is better for him. He did great and keeping his reps going. Gas levels looked similar to before they took the fluid out yesterday but this was expected since his is on the ventilator again.
We finally got to hold Jonah today! It was the best feeling to actually hold him in our arms.
Wednesday, July 2nd
Gas levels are looking better. They are starting a dose of what's like a "water pill" to help him pee more. This should help get rid of some of the fluid in his belly. We just have to make sure his blood pressure doesn't drop because of him losing too much fluid. They are hearing a heart murmur. After doing an echo they didn't see other openings but they did notice the hole he had earlier was smaller. They will just keep a watch on it. Most heart murmurs close on their own.
Thursday, July 3rd
They will continue to give him a dose of the "water pill" daily to help him pee out the fluid. Gas levels are good. Starting to hear some bowel movements. Put the feeding tube down his nose to start giving him a little amount of breast milk every 3 hours. He has liver disease which is common in preemie babies. They will wait until he 2 weeks old before discussing giving him a steroid specific for that. His belly is looking so great today. Still showing fluid but you can see major improvements. I was able to hold him during the day again. Best feeling to snuggle with this guy.
Everything seemed to be going good. We had a few ups and downs this week but definitely were seeing more ups. We were talking about letting more people come up and see him after the holiday weekend. Little did we know what tomorrow was going to bring.
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